tag:blogger.com,1999:blog-4309293625176086078.post6129975352192218267..comments2023-12-28T17:18:03.050-05:00Comments on In the Direction of Our Dreams: Wonder drug to the rescueSherryhttp://www.blogger.com/profile/00328866430156879312noreply@blogger.comBlogger42125tag:blogger.com,1999:blog-4309293625176086078.post-58614303437738621442012-09-20T16:50:43.585-04:002012-09-20T16:50:43.585-04:00What! An ordeal! I'd be a freakin basketcase !...What! An ordeal! I'd be a freakin basketcase ! So now we are subjected to a Hospitalist ... a Hospitalist ... If it weren't so sad that would be hysterical ... <br /><br />I think part of any health care person's training should be to check into a hospital as an anonymous patient...<br /><br />I tell you ... a body can only just so long without a pizza <br /><br />Bless yer bones, Sherry ... manCarolynhttps://www.blogger.com/profile/03663919207326700505noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-69788255823244990782012-09-18T10:32:38.354-04:002012-09-18T10:32:38.354-04:00Of course, I am so glad he is home...especially af...Of course, I am so glad he is home...especially after so much incompetence at Harrisburg. Thanks so, so much to Moffitt. I am sure you have thanked them - the paragraph before the 'take home messages' is quite a strong recommendation - I would send that or at least share with someone at the center or with his particular doctors how highly you think of their care. I must say I was impressed by their continual and prompt responses with good advice and obvious understanding of the seriousness of the situation. And, thank you also to you - his best and most amazing helper and advocate!!Carrienoreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-37295385749629467092012-09-17T21:33:54.074-04:002012-09-17T21:33:54.074-04:00Hallelujah! Unfortunately, none of what you have ...Hallelujah! Unfortunately, none of what you have written about your hospital care surprises me. Thank goodness that you were there to advocate for him. Welcome home!Pam Sprousehttps://www.blogger.com/profile/08911993909677818986noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-16895906903345623152012-09-17T21:28:56.682-04:002012-09-17T21:28:56.682-04:00Glad to see David out of the hospital and enjoying...Glad to see David out of the hospital and enjoying his pizza.Erinhttps://www.blogger.com/profile/08333995679958103393noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-45311791312463057852012-09-17T20:11:14.434-04:002012-09-17T20:11:14.434-04:00I'd be so mad I couldn't see straight, as ...I'd be so mad I couldn't see straight, as I'm sure you were! Glad David is home....Jeannie and Eldyhttps://www.blogger.com/profile/04664198861231288915noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-33144212331848893522012-09-17T15:19:34.080-04:002012-09-17T15:19:34.080-04:00So glad to hear David is home and Moffitt was so r...So glad to hear David is home and Moffitt was so responsive to your needs. Maybe another reason to consider "settling" in Tampa.Catherine, Jo Beth and Gracehttps://www.blogger.com/profile/06889362286725037937noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-74977099966438128422012-09-17T14:26:46.802-04:002012-09-17T14:26:46.802-04:00Echoing your readers' sighs of relief that Dav...Echoing your readers' sighs of relief that David is out of the hospital and very glad that Moffitt was there for you. Wow, what a nightmare which we hope isn't repeated any time soon! You guys deserved every bite of that pizza!!Mike and Terrihttps://www.blogger.com/profile/05533734325496528187noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-14342296003524507892012-09-17T13:34:12.515-04:002012-09-17T13:34:12.515-04:00Sure glad to hear david is out of that hospital! H...Sure glad to hear david is out of that hospital! Hopefully now the two of you can enjoy the area a little bit before returning to Moffitt in Oct. Having lived in Valrico area we've always heard great things about Moffitt. Good to hear you feel the same way. Sherry, you take care of yourself too!Jeffhttps://www.blogger.com/profile/06076523638471888155noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-46132551728025770502012-09-17T11:47:53.447-04:002012-09-17T11:47:53.447-04:00UNREAL...what an ordeal. You have to be exhausted...UNREAL...what an ordeal. You have to be exhausted for sure! Speaking from my son-in-law's doctoring beef, as an emergency room doctor, he has at times been 5 hours back on patients, even doing his own vitals as can't keep nurses with shortage of them, as well as doctors. Then you get the people who have things as small as a splinter, who come to the ER instead of going to their family doctor. Whole system is messed up. Good to hear about Moffitt and pass on to family and friends if needed. And I'm on the hunt for some kind of good tick repellant...and praying for tons of heavy frost and lots of freezing snow this winter :O) Stay on the upload, get to eating some more fun food, resting, and enjoying being out of that "YUKKO" hospital! CJhttps://www.blogger.com/profile/16074480446451710279noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-1860345236466134592012-09-17T11:44:09.533-04:002012-09-17T11:44:09.533-04:00My humble opinion about hospitals is if one is sic...My humble opinion about hospitals is if one is sick enough to need a hospital they need to have a 'momma grizzly' with them to advocate on their behalf. David is so fortunate to have you in his corner as his advocate! I concur pizza is a miracle cure for everything!klbexploreshttps://www.blogger.com/profile/13294131539793643894noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-2019781584818549852012-09-17T11:37:19.637-04:002012-09-17T11:37:19.637-04:00Nothing like a good pizza to lift your spirits!
W...Nothing like a good pizza to lift your spirits!<br /><br />We had the best hospital experience ever at the Mayo Clinic in Scottsdale, AZ last year when Jim had to have emergency gall bladder surgery. Over the years of dealing with our ailing parents, we found our local hospitals to be "hospitals of horrors", too. It's very frustrating.Jim and Gaylehttps://www.blogger.com/profile/13982110996137470496noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-62992704328258971502012-09-17T11:14:14.870-04:002012-09-17T11:14:14.870-04:00What an ordeal for both of you! So glad David has ...What an ordeal for both of you! So glad David has escaped the clutches of the hospital from hell! Now to just stay healthy. We know about Lyme disease first hand and hope that test comes back negative. Fingers crossed that everything continues to improve.Gail Houlehttps://www.blogger.com/profile/04514395566282599562noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-12070866539964725862012-09-17T10:25:36.813-04:002012-09-17T10:25:36.813-04:00You are too kind. I do hope that our experience w...You are too kind. I do hope that our experience will make everyone more cautious about their medical choices. 9:52 and you aren't out burning up the roads??? Hmmmmm you may be starting your PDD recovery after all. :-)Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-38379403786007854512012-09-17T09:52:15.883-04:002012-09-17T09:52:15.883-04:00We're so thrilled to see the picture of David ...We're so thrilled to see the picture of David eating pizza (holy cow a non-vegan one, too!) and headed back home with you. Despite all the struggles, you won the battle. <br /><br />I know there is some kind of lesson in this for all of us and your sharing the story will help us understand health care and its systems, the ups, downs and pitfalls we all need to know about. <br /><br />You've done a wonderful job overseeing David's care and even better documenting the journey for others that may be facing similar struggles, giving them tools to deal with their own battles.Paul and Marti Dahlhttps://www.blogger.com/profile/17332654035718777839noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-51139022544224936962012-09-17T09:42:38.449-04:002012-09-17T09:42:38.449-04:00Thanks Elaine, good to hear from you. Lymes takes...Thanks Elaine, good to hear from you. Lymes takes about 3 weeks to confirm. He will be having weekly blood tests and returns to Moffitt in late October.<br />I think now I will be able to post some about the things that were actually fun here in Pennsylvania. There were a few of those. :-)Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-38820243787161030902012-09-17T09:40:33.541-04:002012-09-17T09:40:33.541-04:00So glad to hear you had such a good experience. G...So glad to hear you had such a good experience. Gives us all hope. A friend wrote the following yesterday after hearing where we were. <br /><br />"As you may or may not know the City of Harrisburg tried to file for bankruptcy a short while ago. The city is in debt to the tune of $325 million. A very bad situation. When we were driving in town I noticed that every other home or business was for sale. Literally. Also very bad. So, one has to wonder if all the smart doctors have moved on to other jobs in other parts of the country leaving behind the ones that you are finding so frustrating"<br /><br />Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-63455432939285419492012-09-17T09:38:47.988-04:002012-09-17T09:38:47.988-04:00Oops, when I wasn't thinking when I typed lymp...Oops, when I wasn't thinking when I typed lymphoma. Brain cramp! I will have to look into insurance plans--maybe it's just my company. The bottom line with David is that he got the care he needed thanks to you and Moffitt.<br /><br />My kids would be more than happy to be my advocates, but it just isn't the same, and I hate to burden them. In fact, my Living Will has her as my medical power of attorney should something happen where I can't make decisions for myself.<br /><br />Hopefully, the results for Lyme come back negative--this might be a one in a million time that the Myeloma helped him by making him sick earlier than it would most.<br /><br />Wishing you some non-eventful days and weeks ahead, Sherry. I'm sure you must be exhausted. hobopalshttp://travelswithmrnimble.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-42972026050556638802012-09-17T09:23:26.069-04:002012-09-17T09:23:26.069-04:00We are so glad to see David is out of the hospital...We are so glad to see David is out of the hospital...thank heavens Moffitt was there for you in your corner even if it was from a distance..I'm sure you can keep an eye on the fevers/temp but is someone monitoring the counts? You must be overtired from advocating..thankfully you are good at it...praying this hurdle is finally jumped once and for all...how long does it take to get the results from the lyme testing? get some rest...thinking of you both...glad you enjoyed that pizza..its a great comfort food...Elainehttps://www.blogger.com/profile/13697546364119777641noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-89415336330209314082012-09-17T08:42:25.490-04:002012-09-17T08:42:25.490-04:00So glad David is out and able to enjoy pizza! I&#...So glad David is out and able to enjoy pizza! I'm so sorry you guys had such a disappointing and frustrating experience.<br /><br />I was cared for at a smallish community hospital here for my issues this summer and I have to say they gave superb care. I couldn't have been treated with more professionalism, attentiveness, compassion and "humanity." As with all things, I believe it varies from institution to institution, the staff (including one's doctors) associated with the facility and the top-down atmosphere of service the administration sets forth. Warren Hospital is part of the St. Luke's network and a not-for-profit hospital. Heck, my surgeon even gave me his personal cell phone number if I had questions during the postoperative recovery period.<br /><br />Just my experience, your mileage will vary. :) The main thing is David is better and home! I'm so glad you have Moffitt to get your back! Gentle hugs to both xxxxTexas Yellow Rosehttps://www.blogger.com/profile/18416672836387064595noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-34500490751316131322012-09-17T08:39:19.825-04:002012-09-17T08:39:19.825-04:00Thanks Karen. We haven't had a pepperoni pizz...Thanks Karen. We haven't had a pepperoni pizza in ages and were just too tired to cook and vegan pizza impossible to find. At this point, David feels better than I do. I'm exhausted from all the "advocating". :-)Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-6298340179683793222012-09-17T08:37:10.909-04:002012-09-17T08:37:10.909-04:00We got very lucky on the pizza place, well with a ...We got very lucky on the pizza place, well with a little research. It's a family owned Italian place and they knew what they were doing! Yum!Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-3519663899949455092012-09-17T08:27:43.631-04:002012-09-17T08:27:43.631-04:00We're sorry we missed you guys too Laurie. We...We're sorry we missed you guys too Laurie. We would definitely have had a lot more fun!Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-52820502113158414442012-09-17T08:26:42.678-04:002012-09-17T08:26:42.678-04:00Tom and Kathy, I'm glad you are here to benefi...Tom and Kathy, I'm glad you are here to benefit from our experience. But I hope you never need Moffitt. I want the goal of Health Care Reform to be that all hospitals can be like this.Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-32158164435499550502012-09-17T08:23:59.657-04:002012-09-17T08:23:59.657-04:00You are so right Nancy, Escaped is just how it fee...You are so right Nancy, Escaped is just how it feels. Pizza may cause as many troubles as it fixes :-) but it definitely tasted good to David after what he said was the worst food he had ever experienced. Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.comtag:blogger.com,1999:blog-4309293625176086078.post-44385138143402754762012-09-17T08:20:47.671-04:002012-09-17T08:20:47.671-04:00I believe you are right Bob, medicine as big busin...I believe you are right Bob, medicine as big business may be at the root of most of the problems. And perhaps that's not just in medicine but more clearly seen there. I have worked with doctors during their fellowships and many, though not all, have very upright motivations. But later on money seems to cloud everything. Still, there are really excellent doctors and some who were in the bottom of their class. Thanks so much for your thoughts.Sherryhttps://www.blogger.com/profile/00328866430156879312noreply@blogger.com